I found this really great information on GBS tonight...I was looking up more information on the internet and came across the GBS/CIDP Foundation International and they had a video on their website. It is about 30 minutes and was done by a newscaster who suffered from GBS himself. The video site is:
http://vimeo.com/11686193
The address for the foundation is:
GBS/CIDP Foundation International
The Holly Bldg.
104 1/2 Forrest Ave
Narberth PA 19072
http://www.gbs-cidp.org/
info@gbs-cidp.org
Phone 610-667-0131
I think the video might be helpful for mom to see if at all possible, Tom Peterson (newscaster) goes into all of the steps of onset of GBS to the different steps of recovery. It is very informative and helpful (in my opinion anyway) and I know how mom loves information.
She sounded good on the phone today and is hoping that she will get the chance to really talk to the doctor in the morning and ask him/her lots of questions. It takes her a little while to think them through and consider the answers, so she is hoping to have his/her full attention for awhile anyway.
Goodnight....
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